Crohn's & Colitis Foundation
To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.
Review Completed: 7/1/2010
From the Council
At the time of the initial review, Crohn's & Colitis Foundation met the Financial Health Standard. However, upon updating its financial data, the organization has a negative balance of unrestricted net assets for the most current year (2011).
(Also of note, Crohn's & Colitis adjusted its fiscal year, so 2009 is only a partial year).
2277 Highway 36 West
Roseville, MN 55113
||Jill Edsen, Executive Director
|Number of Full-Time Equivalents (FTE)
|Number of Volunteers
|Number of Clients Served
||Accepts donated goods
||Dr. Christopher Shepela
|Number of Board Members
|Board meetings with quorum
|Average Member Attendance at Board Meetings
|Publicly Available Documents
Most Recent 990
Most Recent Audit
In 2012, CCFA reached fundraising and research milestones including investing $16 million in research with a roster of 160 grants.
Our advocacy efforts in Washington, D.C. are supported by online strategies for gaining sponsorship for our IBD bill in Congres and we secured over 49 members for our caucus. We provided testimony in FDA hearing, leading to a new drug approval for use in treating UC patients. More than 110 patient advoactes participated in CCFA Day on the Hill, participating in over 125 meetings iwth Senators, Representatives and legislative staff.
CCFA’s signature fundraising events launched in 2008, Team Challenge—a half marathon and training program, and Take Steps—a community walk, are proving to be strong contributors to the bottom line. Team Challenge engaged 2,550 participants and Take Steps saw an estimated 60,000 walkers in all 50 states.
Chapters served nearly 4,000 patients per quarter through support programs such as patient conferences, educational seminars, and support groups. Professional education also saw an increase in participation at local and national meetings.
Our MN Camp Oasis for kids living with IBD hosted 100 campers in 2012, offering a weeklong residential experience where kids get the emotional and social support they need to manage their disease.
Goals are taken from our Strategic Plan ending in 2013:
• Greatly increase the number of people who recognize the Foundation as the leader in the fight against Crohn’s disease and ulcerative colitis, as well as the most authoritative, useful, trusted, and unbiased source of information on these diseases.
• To achieve a significant increase in the efficiency and effectiveness of our governance and management.
• To double our research investment to $30 million to better understand the causes of Crohn’s disease and ulcerative colitis and to find cures and preventions.
• Double the number of donors and double annual revenue to $50 million.
• To reach and impact significantly more patients, families, health care professionals, and legislators through education, patient services, and advocacy.
• To increase and improve our use of technology to achieve our mission and
goals effectively and efficiently.
Community or Constituency Served
children and adults affected by Crohn's disease or ulcerative colitis
Geographic Area Served
Minnesota, North Dakota and South Dakota by local chapter and United States as organization
Impact and Programs
3 Year Average Expenses
Unrestricted Net Assets
|End of Year:
|Beginning of Year
|Unrestricted Net Assets (End of Year), Current 990
|Based on information provided on 2009 to 2011