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ALS Association, MN/ND/SD Chapter, The

Until there is a cure, empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support while contributing to the fight to treat and cure ALS through global research and advocacy.

Mission Statement
Review Completed: 5/24/2010
333 Washington Ave N, Ste 105
Minneapolis, MN 55401
Phone: 612-672-0484
Fax: 612-672-9110
Other Names Used The ALS Association, Minnesota Chapter; The ALS Association, MN Chapter; Amyotrophic Lateral Sclerosis Association, Minnesota Chapter; The ALS Association, Minnesota, North Dakota, South Dakota Chapter
EIN 41-1756085
Principal Staff Jennifer Hjelle, Executive Director
Number of Full-Time Equivalents (FTE) 17
Number of Volunteers 850
Number of Clients Served 500
Donated Goods Accepts donated goods
General Information
Board Chair Amy Brachio
Number of Board Members 17
Board meetings with quorum 9
Average Member Attendance at Board Meetings 11.44
Publicly Available Documents Most Recent 990
Most Recent Audit
Board
Accomplishments
The ALS Association, MN/ND/SD Chapter served more than 500 people with ALS and their families in Minnesota, North Dakota, Eastern South Dakota, and Superior, Wisconsin. Eighty percent of people with ALS registered with the Chapter used the Durable Medical Equipment Loan Pool. An average of 250 to 300 items rotated through the pool each month. More than 244 people utilized the Hrbek-Sing Communication and Assistive Device Program; approximately 1,200 technology items were used from this program. Over 100 families used the Jack Norton Family Respite Care Program; more than 9,500 hours of respite care was provided to families in need. Over 329 different people participated in nine different support groups located throughout our service area. The Occupational Therapy/Physical Therapy program paid for more than 50 home visits that would not have been covered by insurance. Follow up calls were placed to 336 people with whom the Chapter had not had contact with in the previous four months. Packet follow-up calls were made to 168 newly diagnosed people with ALS. Care Services Coordinators also attended weekly ALS Clinics at five different locations throughout the service area.
Current Goals
The ALS Association, Minnesota Chapter is in the second year of its current three year strategic plan. Goals include: Provide every person with ALS and their families access to high quality, consistent and compassionate support services, Operate within a business model designed to ensure stability and promote financial strength, growing the organization to five million dollars, Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig’s Disease, Empower volunteers in all aspects of our organization to be ambassadors of our Chapter and our mission.
Community or Constituency Served
People with ALS and their families in our service area.
Geographic Area Served
Our service area includes the states of Minnesota, North Dakota, South Dakota, and Superior, Wisconsin.
Impact and Programs

3 Year Average Expenses

Program Services: $2,108,092 77.8%
Management: $201,065 7.4%
Fundraising: $402,055 14.8%

Unrestricted Net Assets

2012 2011 2010
End of Year: $1,060,003 $1,334,700 $1,557,213
Beginning of Year $1,334,700 $1,557,213 $1,371,890
Difference ($274,697) ($222,513) $185,323
Unrestricted Net Assets (End of Year), Current 990 $1,060,003
Based on information provided on 2010 to 2012
Financials

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