ALS Association, MN/ND/SD Chapter, The
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.
Review Completed: 5/23/2013
333 Washington Ave N, Ste 105
Minneapolis, MN 55401
|Other Names Used
||The ALS Association, Minnesota Chapter; The ALS Association, MN Chapter; Amyotrophic Lateral Sclerosis Association, Minnesota Chapter; The ALS Association, Minnesota, North Dakota, South Dakota Chapter
||Jennifer Hjelle, Executive Director
|Number of Full-Time Equivalents (FTE)
|Number of Volunteers
|Number of Clients Served
|Number of Board Members
|Board meetings with quorum
|Average Member Attendance at Board Meetings
|Publicly Available Documents
Most Recent 990
Most Recent Audit
The ALS Association, MN/ND/SD Chapter served approximately 500 people with ALS and their families in Minnesota, North Dakota, Eastern South Dakota, and Superior, Wisconsin. Seventy percent of people with ALS registered with the Chapter used the Durable Medical Equipment Loan Pool. An average of 250 to 300 items rotated through the pool each month, with more than 2500 items going in and out of 9 different Durable Medical Equipment Pool locations. More than 210 people utilized the Hrbek-Sing Communication and Assistive Device Program; approximately 1,200 technology items were used from this program. Over 100 families used the Jack Norton Family Respite Care Program; more than 9,500 hours of respite care was provided to families in need. Over 525 different people participated in eight different support groups located throughout our service area. The Occupational Therapy/Physical Therapy program paid for 43 home visits that would not have been covered by insurance. Follow up calls were placed to 312 people with whom the Chapter had not had contact with in the previous four months. Packet follow-up calls were made to 151 newly diagnosed people with ALS. Care Services Coordinators also attended weekly ALS Clinics at six different locations throughout the service area.
Our goals have been updated for this year to include: 1. Provide every person with ALS, in the areas that we serve, and their families access to high quality, consistent and compassionate support services. 2. Operate a sustainably growing business model with diversified revenue designed to ensure stability and promote financial strength. 3. Maximize awareness and advocacy to drive increased funding for ALS research focused on understanding the disease, developing treatments and ultimately finding a cure. 4. Leverage improved use of technology to enhance care services, development, awareness and advocacy
Community or Constituency Served
We serve people with ALS and their families.
Geographic Area Served
Minnesota, North Dakota and South Dakota
Impact and Programs
3 Year Average Expenses
Unrestricted Net Assets
|End of Year:
|Beginning of Year
|Unrestricted Net Assets (End of Year), Current 990
|Based on information provided on 2009 to 2011
|From the Charity
||The ALS Association MN/ND/SD Chapter is pleased to share the results of our Charities Review Council Review. We are committed to the Accountability Standards and to being transparent with our donors. Thank you to all of our supporters!